Emma not too long ago mirrored on the ups and downs she has confronted for the reason that household introduced Bruce’s analysis with frontotemporal dementia in February—practically a 12 months after they revealed he was battling aphasia, which additionally impacts cognitive talents, and was stepping away from performing,
“I struggle with guilt, knowing that I have resources that others don’t,” Emma wrote in an article for Maria Shriver‘s Sunday Paper, revealed on Nov. 11. “When I’m able to get out for a hike to clear my head, it’s not lost on me that not all care partners can do that. When what I share about our family’s journey gets press attention, I know that there are many thousands of untold, unheard stories, each of them deserving of compassion and concern.”
She continued, “It’s important to me to be an advocate on behalf of those families who don’t have the time, energy, or resources to advocate for themselves.”
Emma famous that one of many classes she discovered is that “hope is everything.” She wrote, “I have so much more hope today than I did after Bruce was first diagnosed. I understand this disease more now, and I’m now connected to an incredible community of support. I have hope in having found a new purpose—admittedly one I never would have gone looking for—using the spotlight to help and empower others. And I have hope in how our entire family can find joy in the small things, and in coming together to celebrate all the moments life has to offer.”
Look again at Bruce’s household moments over time:
